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In 2026, an estimated 446,500 Australians are living with dementia, with another 1.7 million people involved in their care. Yet dementia can still be difficult to talk about. People may worry about saying the wrong thing, not knowing what to say or not knowing how to support someone they care about.
At mecwacare, conversations about dementia are part of everyday life. We take the time to understand the person behind the diagnosis — their story, relationships, interests and the things that matter to them.
This Dementia Action Week, we’re sharing some of the things people living with dementia, their families and carers have told Dementia Australia can help keep the conversation going.
You don’t need the perfect words
It’s understandable to worry about saying the wrong thing when talking about dementia. But starting a conversation can be more important than finding the perfect words. Asking how someone is going, listening to what they have to say and letting them know you’re there can be a meaningful place to start.
Be curious
You don’t need to be an expert to have a conversation about dementia. Ask questions, listen and give the person time to share their experience. Dementia can affect people in different ways, so there is no single experience or approach that works for everyone.
See the person, not just the diagnosis
Dementia is part of someone’s life, but it doesn’t define who they are. Their relationships, interests, memories, personality and sense of purpose continue to matter.
Taking the time to understand what someone enjoys, what is important to them and how they like to spend their time can help keep those parts of their life at the centre of their support.
Life continues after diagnosis
A dementia diagnosis can bring change and uncertainty, but it doesn’t mean that life stops.
People living with dementia can continue to enjoy relationships, activities and experiences with the right support around them. Dementia Australia notes that people can lead active and fulfilling lives for many years after diagnosis.
Connection may look different
As dementia progresses, communication can change. Sometimes conversations take longer, familiar activities need to be adapted or support from others becomes more important.
That doesn’t mean connection has to disappear. Including someone in conversations, speaking directly to them, listening carefully and giving them time to respond can all help maintain a sense of connection and respect.
Start wherever feels natural
A conversation about dementia doesn’t have to begin with a serious sit-down discussion. A television program, something you’ve read or a conversation about a family member can provide a natural opening.
Some people will be ready to talk straight away. Others may need more time. What matters is leaving the door open to come back to the conversation.
Why this matters to us
Every person we support has a story, relationships and a sense of purpose that dementia doesn’t erase. Our role is to understand what matters to each person and support them to stay connected to the people, places and things that are important to them.
This Dementia Action Week, you don’t need to have all the answers. You can simply start a conversation.
If you or someone you love is living with dementia, support is available. Dementia Australia’s National Dementia Helpline is available on 1800 100 500, and mecwacare’s team can also help you explore support options for your family. Contact us on 1800 163 292 to speak with our friendly team.
